The Clearity Foundation is a not-for-profit organization providing patient support services including lab test coordination, Tumor Blueprint compilation, interpretation and clinical trial identification.
FORCE provides information for women who have a high risk of developing breast or ovarian cancer. The organization provides information about hereditary cancers, risk management and the options available to high-risk women. FORCE also has a toll-free helpline, a message board and a chat room for women to discuss issues they share.
In the Family was initiated by Joanna Rudnick. Joanna explores with us what it means to have inherited a BRCA mutation and how it has changed her life. The website also provides a number of links to understand more about the risks of breast and ovarian cancer associated with inheriting BRCA mutations, the options available to manage these risks and the personal effects of being of BRCA mutation carrier.
Eating Pomegranates: A memoir of mothers, daughters, and the BRCA gene, 2009
Sarah Gabriel
Blood Matters: from inherited illness to designer babies, How the world and I found ourselved in the future of the gene, 2008
Masha Gessen